Husband and I constantly fighting, intimacy is a dark and distant memory. Both exhausted in different ways. Am super stunning at min with huge great cold sore and massive spot under nose. Joy. 9pm is late to bed for me at min. What kind of a life is that??
Thursday, 25 March 2010
Saturday, 20 March 2010
Yuk
Amelie and I are poorly
sick. Bloody awful tummy bug, sickness and diarrhoea. Not nice. She was sick all day y'day and today. Think she's on the up. I haven't been sick but horrible tummy.
We've done really well, it's the first time we've had to take her to see a doc. Not bad for 9 months. Is horrible watching your little honey be so sick and miserable when all you can do is watch, comfort them and follow doctors advice. Is all part and parcel of life tho.
sick. Bloody awful tummy bug, sickness and diarrhoea. Not nice. She was sick all day y'day and today. Think she's on the up. I haven't been sick but horrible tummy.
We've done really well, it's the first time we've had to take her to see a doc. Not bad for 9 months. Is horrible watching your little honey be so sick and miserable when all you can do is watch, comfort them and follow doctors advice. Is all part and parcel of life tho.
Thursday, 18 March 2010
Exhaustion
Just needed to post that I passed out a couple of nights ago and am completely and utterly exhausted. Feels like I really have nothing to give at the moment yet I must still give to my husband, daughter, parents, friends. I hope it will stop soon. It just hit me like a bullet from nowhere. I have to have bloods done by my GP. I hope it's nothing bad. I don't have the energy to worry right now. Please God, let me get better soon so I can function again, as a wife and a mother.
Saturday, 13 March 2010
Impatience and solutions
Ok, remap look very cool and will hopefully bear some fruit but yesterday I was having a look at the Disabled Parents Network equipment list and ended up finding something called a comfort carrier which is basically a papousse for babies from 3 months up to 2 years. Check it out here http://www.babybjorn.com/en-gb/Eng/products/Mobility/BABYBJORN-Comfort-Carrier/ The nearest stockist to us is JoJoMamanBebe in Hale who have ordered one in for me which should be in at the end of next week. I had to pay for it upfront and at £130 it's not cheap but I explained my situation and they said I could try it and if it's not right they'll refund me straight away. Let's just hope Amelie's not sick in it when we try it out! Maybe I should create a new career in reviewing disability aimed independence products with a heavy slant on parenting and cooking aids.
I know as Amelie gets bigger she'll be moving around more and more and probably want to be strapped in less and less but I figure we can use it as an alternative to a pushchair when we need it. Trial and error is an expensive business, especially as a disabled person buying products to help increase independence but I figure as long as it's not extortionate it's worth buying in the vein hope that it really will help in just the way I need. Am hoping my optimism will pay off in spades :-)
I know as Amelie gets bigger she'll be moving around more and more and probably want to be strapped in less and less but I figure we can use it as an alternative to a pushchair when we need it. Trial and error is an expensive business, especially as a disabled person buying products to help increase independence but I figure as long as it's not extortionate it's worth buying in the vein hope that it really will help in just the way I need. Am hoping my optimism will pay off in spades :-)
Friday, 12 March 2010
Friday feeling
Looking forward to the end of the day so we can spend some time with Scruff. Been a successful week but will be nice to have him home for a couple of days. Drive still being done, nice workers have said they can make me a makeshift ramp if needs be. We can just about manage to get in and out without it for the weekend.
Mother's day on Sunday. Is a very special first for me. Becoming a mother makes you realise that it is important for a lot of people that these things don't just go by unnoticed, even if Scruff does think such events were invented by Hallmark to boost sales between two more significant dates in the calendar, such as Valentine's day and Easter.
Have also written to a charity called Remap who are a bunch of very clever engineers who design one off equipment for disabled people, the type of stuff not to be found on the market. I've put in a request for them to make me something that fits to my chair that I can use to take Amelie out in and that is more comfortable than a sling. Let's see if they get back to me. Fingers crossed.
Mother's day on Sunday. Is a very special first for me. Becoming a mother makes you realise that it is important for a lot of people that these things don't just go by unnoticed, even if Scruff does think such events were invented by Hallmark to boost sales between two more significant dates in the calendar, such as Valentine's day and Easter.
Have also written to a charity called Remap who are a bunch of very clever engineers who design one off equipment for disabled people, the type of stuff not to be found on the market. I've put in a request for them to make me something that fits to my chair that I can use to take Amelie out in and that is more comfortable than a sling. Let's see if they get back to me. Fingers crossed.
Thursday, 11 March 2010
Hmmmmm
Ok, bit stumped now. The sling worked really well with the electric chair but am not needing to use it so much anymore as I can now drive from my manual chair etc. So for the most part I am much preferring using my manual chair. But, as in everything in life, it has it's downsides. The sling catches on the wheels and because I'm not just pushing a little joystick to zoom around the place and am actually physically exerting myself, Amelie feels heavier in the sling hence it becoming an unsustainable option for more than a couple of hours at a time. So, back to the non pushable pushchair it is for us. Am trying to think of more satisfactory options for the future as I would prefer to have her with me when we're out and about, naturally, as her mother.
Other current focus is our drive is being resurfaced. Normally that wouldn't cause all that much disruption but they have had to take my ramp away until Sunday which allows me access from the house to the outside world to let the concrete set. Joy. Never a dull moment when living with paralysis.
Other current focus is our drive is being resurfaced. Normally that wouldn't cause all that much disruption but they have had to take my ramp away until Sunday which allows me access from the house to the outside world to let the concrete set. Joy. Never a dull moment when living with paralysis.
Monday, 8 March 2010
Freedom
Went out to see a friend today with my gorgeous girlie on my own for the very first time. Driving to go and meet her with amelie in the van made me smile and grin lots. Was the bestest feeling ever. Know I won't be able to do it all the time but as much as we can would be totally fab. Thankyou so much hugsband for playing such a pinnacle role in all this. Love you heaps and heaps.
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